Massachusetts General Hospital
2014 Clinical Research Training Fellowship Variation in Quality of Epilepsy Care and Association with Patient-Centered Outcomes
Target brain disease(s): Epilepsy (seizure disorder)
Project goal: Study the impact of how physicians deliver care to patients with epilepsy and to redesign care delivery so that the individual goals and needs of the patient drive positive outcomes and define quality rather than traditional process measures.
Project description: The American Academy of Neurology and the American Epilepsy Society have developed a method to measure the quality of taking care of people with epilepsy. The idea is to measure things that the doctor does that directly reflect things important to patients, such as the number of seizures, ability to drive, and medication side effects. This project investigated how effective different types of doctors are and if improved health outcomes are associated with excellent care according to the epilepsy quality measures or with high-quality care focused on the individual patient’s needs and goals. The hope was that this study would contribute to the design of a new care model that will define excellence in the care of patients with epilepsy and other chronic neurological conditions.
Funding: Received $130,000 in research funds.