The latest news on brain health featuring ways patients can advocate for their health
In this month’s brain disease news round-up, we dive into the challenges facing patients with brain disease. From new obstacles brought on by COVID-19 to patient language barriers and environmental challenges, read on to learn about ways patients can advocate for their health.
The Impact of COVID-19 on Neurodevelopmental Disabilities
Those with neurodevelopmental disabilities, such as autism, intellectual disability and ADHD, face new challenges during the COVID-19 pandemic. Patients may struggle to access education and interventional services such as physical, occupational and speech therapy. This is due to the national health crisis and safety restrictions. A survey conducted through CARING, a clinical research program, found more than 90% of respondents lost access to some kind of healthcare services. Some families struggled to access medical providers they used to see regularly. A bright side, however, is the increased use of telehealth as it allows more families to access services remotely.
Spanish-Language Resources for Parkinson’s Patients
Parkinson’s disease impacts nearly one million Americans. So it is important to reach patients where they are and in the language they speak. Our partner the Parkinson’s Foundation does just that through their selection of Spanish language videos on their Youtube channel. By browsing the wide array of videos, Spanish-speaking patients with Parkinson’s can find information on communication strategies, exercises, care action plans and more.
Protecting ALS Patients from Fire Smoke in the Western U.S.
Air quality plays a large role in health, and this is especially true for patients with brain disease. With wildfires burning on the west coast of the United States, our partner the ALS Association shared their guide for ALS patients to protect themselves from smoke including symptoms to be aware of and when to consider visiting the Emergency Department.
Stay updated on the latest news from the American Brain Foundation by following up on Twitter and Facebook. Find more resources for patients and information on research grants on our website.